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World’s First Crowdfunded Genome Sequencing Project Uncovers 4-Year-Old’s Unknown Genetic Disease

document Crowdfunding
Summary
The Rare Genomics Institute (RGI), a non-profit organization that uses genome sequencing and other biotechnology to help children with rare genetic diseases, and an Ivy League medical research center have jointly identified a new gene variant in four-year-old Maya Neider that may indicate a brand-new disease.
Description
By turning to the Internet to raise funds from a large base of donors, RGI is pioneering a funding model for rare disease research. In an overwhelming response, donors across the United States contributed more than $3,500 to the research project for Maya, with most amounts between $5 and $50 each. The project reached its fundraising goals within just six hours of launching an online campaign.

Tags: Crowdfunding, Crowdsourcing, genetic disease, Genetic Testing, genome sequencing project, global development delays
Samuel Bennett Posted by Samuel Bennett
Jul 20, 2012 01:07 pm GMT Viewed 755 times
Author: Amanda Lordemann Source
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